Newlife Foundation Charity
PUBLISHED: 16:06 17 January 2013 | UPDATED: 22:40 20 February 2013
Leading UK children's disability charity Newlife Foundation is calling on the region's crafters to help support disabled and terminally-ill youngsters in the county. Press officer Jane Vincent explains how you can get involved
Leading UK childrens disability charity Newlife Foundation is calling on the regions crafters to help support disabled and terminally-ill youngsters in the county. Press officer Jane Vincent explains how you can get involved...
Whether you prefer to knit, crochet, sew, embroider, bake, make cards or jewellery or anything else that comes to mind, your creative skills can help Newlife support children like 10-year-old Corey Miles, from Hereford, who has a diagnosis of autism and severe learning difficulties which results in challenging behaviours.
Newlife helps thousands of families like Coreys across the UK and in his case the charity was able to provide more than 1,100 of specialist sensory equipment designed to have a calming effect.
Coreys mum, Jaime Miles said: Having the sensory equipmen, which includes fibre optics, a specialist bubble tube and projector, is very important because it means when Corey is under stress we can take him into his sensory room and play calming music while he watches the lights and colours. One of us sits in with him and strokes his hair while he calms down. We use this on a daily basis and it makes a huge difference to family life. We know from experience that disability equipment is expensive, which can price it out of the reach of many families. Thats why we turned to Newlife for help.
Newlife lead nurse Karen Dobson added: The equipment provides Corey with visual and tactile feedback to enhance his development, improve his communication skills and help create a space where he feels safe. Sensory aids can play a vital part in the day to day life and development of children like Corey.
Getting involved in the Newlife Get Crafty campaign is simple people can make something and sell it at local sales, giving the proceeds to Newlife, or they can donate handcrafted goods and the charity will sell them. We are also encouraging supporters to spread the word to friends and family or simply donate cash. With your help, Newlife can say yes to families having hope through research, yes to carers getting support from its nurses, yes to children who need equipment to overcome lifes obstacles.
At Newlife we put disabled and terminally-ill children and their families at the heart of everything we do. We operate a national Newlife Nurse Helpline giving families vital information on conditions, key services and a friendly ear on the other end of the phone.
We have funded 8.2million of disability aids for more than 5,400 under-19s 40,354 of this for 27 grants in Herefordshire, Monmouthshire and Powys and we support end-of-life children by prompt provision of specialist equipment, where possible within 72 hours. We also invest in medical research and campaign for a fairer deal for children to obtain the essential equipment and services they deserve. In 2012 we invested 1.5million in the opening of the Newlife Birth Defects Research Centre at Great Ormond Street Hospital, to target the understanding, treatment and ultimately the prevention of syndromes, diseases and malformations that affect babies and cause miscarriages and stillbirths.
Newlife was established 1991 as the Birth Defects Foundation; the two founders both had children with disabilities and had experienced difficulties in finding appropriate support. The charity later changed its name Newlife Foundation to help children with any disability, be it in-born or through accident, prematurity, or an acquired condition such as Meningitis.
Our chief executive officer, Sheila Brown, is a parent of disabled children and a leading activist and speaker for the welfare and health of disabled children, awarded an OBE by the Queen in 2002 for services to child health.
Newlife receives no Government funding and we are reliant on income from our unique recycling operation plus the support of Friends of Newlife all over the UK and appeals to carry out our work. To meet current demand, the charity needs more than 100,000 a month to provide essential equipment, such as wheelchairs, beds, walking frames, seating, safety equipment and communication aids, to disabled
More information on the charity can be found at www.newlifecharity.co.uk or the trading company at www.newlifetrading.co.uk. For advice from the Newlife Nurse Services, call 0800 902 0095.